Top Cystic Fibrosis RSS Feeds | Cystic Fibrosis Sites | CF Sites


RSS Feedcysticfibrosisnewstoday.com/.. 

Websitecysticfibrosisnewstoday.com

About Site – Cystic Fibrosis News Today is a digital news publication dedicated to offering comprehensive daily news coverage of CF. Read the latest Cystic Fibrosis news and articles. Stay informed about approved therapies, new medications and developments to treat CF.
Frequency – about 13 posts per week
Since – Apr 2014

RSS Feedcfroundtable.com/blog-2/feed 

Websitecfroundtable.com/blog-2

About Site – The purpose of USACFA is to provide a source of information for CF adults regarding the basis, nature and progression of the disease, as well as the latest treatments and research to fight it. It also offers a forum for CF adults to communicate with each other. Our many columnists provide insights on a wide variety of subjects related to CF.
Frequency – about 3 posts per week
Since – Mar 2011

RSS Feedcysticfibrosis.com/feed 

Websitecysticfibrosis.com/blog

Headquarters in Bethesda, MD

About Site – A worldwide Cystic Fibrosis community combining cultures, nationalities and age groups. The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with the disease the opportunity to lead full, productive lives by funding research and drug development, promoting individualized treatment, and ensuring access to high-quality, specialized care.
Frequency – about 3 posts per month

RSS Feedyoutube.com/feeds/videos.xml.. 

Websiteyoutube.com/user/thefreylife..

About Site – We are daily vloggers on Youtube sharing this crazy journey called life with all of you. Laugh with us. Cry with us. See the world with us. Get a glimpse of life with Cystic Fibrosis. Be encouraged as you watch our videos… we hope they make your smile and and bring joy to your day. Welcome to THE FREY LIFE!
Frequency – about 7 posts per week
Since – Mar 2014

RSS Feedyoutube.com/feeds/videos.xml.. 

Websiteyoutube.com/user/CFTrust/videos

United Kingdom

About Site – The Cystic Fibrosis Trust is the only UK-wide charity dedicated to fighting for a life unlimited by cystic fibrosis (CF) for everyone affected by the condition. Our mission is to create a world where being born with CF no longer carries a death sentence, when everyone living with the condition will be able to look forward to a long, healthy life.
Frequency – about 3 posts per month
Since – Oct 2008

RSS Feedcysticfibrosis.ca/blog/feed 

Websitecysticfibrosis.ca/blog

Toronto, Ontario

About Site – Cystic Fibrosis Canada is a national charitable not-for-profit corporation committed to finding a cure for cystic fibrosis (CF). We invest more in life-saving CF research and care than any other non-governmental agency in Canada.
Frequency – about 2 posts per week
Since – Apr 2016

RSS Feedcysticfibrosisjournal.com/cu.. 

Websitecysticfibrosisjournal.com

About Site – The Journal of Cystic Fibrosis is the official journal of the European Cystic Fibrosis Society. The journal is devoted to promoting the research and treatment of cystic fibrosis. To this end the journal publishes original scientific articles, editorials, case reports, short communications and other information relevant to cystic fibrosis.
Frequency – about 2 posts per week

RSS Feedinitforbennett.com/feeds/pos.. 

Websiteinitforbennett.com

Texas

About Site – Cystic fibrosis is a life-threatening genetic disease that causes mucus to build up and clog some of the organs in the body, particularly the lungs and pancreas. When mucus clogs the lungs, it can make breathing very difficult. The thick mucus also causes bacteria (or germs) to get stuck in the airways, which causes inflammation (or swelling) and infections that lead to lung damage.
Frequency – about 3 posts per month
Since – Jul 2008

RSS Feedclairesplacefoundation.org/b.. 

Websiteclairesplacefoundation.org/blog

California

About Site – Claire Wineland is founder of Claire’s Place Foundation, a 501c3 committed to helping others living with cystic fibrosis like herself. Our mission is to heighten public awareness about Cystic Fibrosis and improve the quality of life for the families it affects by providing education, life skills, inspiration, and positive support.
Frequency – about 2 posts per month
Since – Jul 2011

RSS Feedcontinentchasers.com/feed 

Websitecontinentchasers.com

Ireland

About Site – Continent Chasers Wife & Cystic Fibrosis Husband From Poland and Ireland travelling the world 84 countries. Mission is to Visit Each Country on the planet and to highlight Cystic Fibrosis and to show that serious illness doesn’t have to stop you following your dreams.
Frequency – about 1 post per week

RSS Feedcfnz.org.nz/feed 

Websitecfnz.org.nz

About Site – Cystic Fibrosis New Zealand is the only dedicated organisation caring for the social, emotional and financial needs of the 500 people in NZ who have the condition. CFANZ will optimise quality of life for people with cystic fibrosis and their families; striving for normal life expectancy.
Frequency – about 3 posts per month

RSS Feedivsolutions.com/blog/feed 

Websiteivsolutions.com/blog

United States

About Site – IV Solutions is a full service cystic fibrosis pharmacy that provides home infusion treatments, respiratory inhalation therapies, and specialty CF medications. Since 1986, we’ve been there to help cystic fibrosis patients along with their families and healthcare providers. We’re here to support you through individualized instruction, proactive refill reminders, on-going care coordination.
Frequency – about 1 post per month
Since – Dec 2015

RSS Feedlivewitheverybreath.wordpres.. 

Websitelivewitheverybreath.wordpres..

About Site – Once you choose hope, anything’s possible. it’s also a good way for me to connect with others in the CF community. Others in my situation may find it comforting to see they aren’t alone. Blog by jordan.
Frequency – about 1 post per month
Since – Oct 2013

RSS Feedgetitoffyourchestcf.com/feed 

Websitegetitoffyourchestcf.com

Leicester, England

About Site – Stanley-Ray was diagnosed with cystic fibrosis at 20 days old, this facebook page is to keep people updated on his progress & to raise funds for CF trust.
Frequency – about 1 post per month
Since – Sep 2016

RSS Feedbehindthesmileofacystic.blog.. 

Websitebehindthesmileofacystic.blog..

About Site – My personal spin with Cystic Fibrosis tips, tricks, positive outlooks. All while making my dreams come true! “Always Smile. I want to encourage everyone with CF young or old to reach for you dreams, no matter how big or small they can be. As long as you have the right attitude in life, your disease will not bring you down!
Frequency – about 1 post per month
Since – Jan 2012

RSS Feedcfkids.org.uk/feed 

Websitecfkids.org.uk

Portsmouth, England

About Site – CF Kids helps by providing equipment, such as nebulisers, which can be an essential part of a CF Kids daily routine at home, but may not be available because of the NHS budget. We also provide exercise equipment and lessons, plus have a number of other services we offer to families in the Portsmouth and Southampton areas.
Frequency – about 1 post per month

RSS Feedmorethandna.org/feed 

Websitemorethandna.org

Peoria, Illinois

About Site – Spreading Awareness about Cystic Fibrosis through sharing our experiences in life! AND finding a CURE for CF!
Frequency – about 2 posts per month

RSS Feedtor-pastthepointofnoreturn.b.. 

Websitetor-pastthepointofnoreturn.b..

About Site – A place for me to record the highs and lows of life on the transplant list, and my new life beyond it. Cystic Fibrosis waited 4years for a double lung transplant and finally recieved the gift of life 10.10.11! All views my own.
Frequency – about 2 posts per month
Since – May 2005

RSS Feed66roses.blogspot.com/feeds/p.. 

Website66roses.blogspot.com

Hershey, PA

About Site – Blog by Erin Moore, I’m just a mom with 3 wonderful kids, two of which are twins, one of which has Cystic Fibrosis, and I want to share my thoughts. This blog, 66 Roses, is dedicated to finding the cure.
Frequency – about 1 post per month
Since – May 2010

RSS Feedbreathinisbelievin.org/feed 

Websitebreathinisbelievin.org

Bozeman, MT

About Site – The Cody Dieruf Benefit Foundation was formed in March of 2006 in honor of Cody Dieruf who passed away from Cystic Fibrosis at 23 years old. Uniting communities and families living with Cystic Fibrosis by raising awareness, providing emotional and financial assistance, encouraging health management, and inspiring life experiences.
Frequency – about 1 post per month

RSS Feedthesprogslife.com/feeds/post.. 

Websitethesprogslife.com

Cobham, Surrey

About Site – Blog by George. I started this blog back in January 2012. At first i didnt want this to be a public blog, just some where i could write my thoughts and feelings, sort of a diary and journey through my time getting on and waiting on the transplant list.
Frequency – about 1 post per month
Since – Jan 2012

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